On 14 September, our Action organized a workshop on the burden of rare diseases, in collaboration with the European Joint Programme on Rare Diseases (EJP RD). The workshop was held as part of the EJP RD General Assembly meeting.
The workshop aimed to present the methodologies for assessing burden of disease, with a specific interest on rare diseases. Expected outcomes were to engage the community in this important topic and build new collaboration
More information about the workshop is available via https://www.burden-eu.net/activities/webinars/576-webinar-measuring-the-burden-of-rare-diseases.