COST Action CA18218

Burden of disease: why does it matter for rare diseases?

On 14 September, our Action organized a workshop on the burden of rare diseases, in collaboration with the European Joint Programme on Rare Diseases (EJP RD). The workshop was held as part of the EJP RD General Assembly meeting.

The workshop aimed to present the methodologies for assessing burden of disease, with a specific interest on rare diseases. Expected outcomes were to engage the community in this important topic and build new collaboration

More information about the workshop is available via

About COST

COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. COST Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation. Read more via

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