COST Action CA18218

Burden of disease: why does it matter for rare diseases?

On 14 September, our Action organized a workshop on the burden of rare diseases, in collaboration with the European Joint Programme on Rare Diseases (EJP RD). The workshop was held as part of the EJP RD General Assembly meeting.

The workshop aimed to present the methodologies for assessing burden of disease, with a specific interest on rare diseases. Expected outcomes were to engage the community in this important topic and build new collaboration

More information about the workshop is available via https://www.burden-eu.net/activities/webinars/576-webinar-measuring-the-burden-of-rare-diseases.

About COST

COST (European Cooperation in Science and Technology – see www.cost.eu) is a unique platform where European researchers can jointly develop their ideas and initiatives across all scientific disciplines through trans-European networking of nationally funded research. COST is supported by the European Union (EU) Horizon 2020 Programme.

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COST is supported by the EU Framework Programme Horizon 2020

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